pnh.aamds.orgPNH Foundation Merges with AAMDSIF | Aplastic Anemia & MDS International Foundation

PNH Foundation Merges with AAMDSIF | Aplastic Anemia & MDS International Foundation ") ") Skip to main content Google Tag Manager Pinterest Instagram YouTube LinkedIn Facebook Twitter Join Us Donate Join Us! IMPORTANT: Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19) » Search form Search Toggle navigation Patients Learn About Your Disease Know Your Treatment Options Control Your Care Resources to Help Find a Specialist Caregivers Caregiving Advice Caring by Patient Type Caring for the Caregiver Resources to Help Professionals Resources MDS Clinical Research Consortium Fund Your Research Professional Conferences Diseases Acute Myeloid Leukemia (AML) Aplastic Anemia Chronic Lymphocytic Leukemia (CLL) Myelodysplastic Syndromes (MDS) Paroxysmal Nocturnal Hemoglobinuria (PNH) Related Diseases Treatments Caring for Yourself Therapies Bone Marrow Transplant Clinical Trials Drugs Education COVID-19 Information Conferences Webinars Control Your Care Research Articles FAQs Glossary of Terms Glossary of Drug Names Patient Guides and Fact Sheets Support March for Marrow Patient HelpLine Request Educational Materials Grassroots Fundraising Support Networks Community Events Volunteer AAMDSIF PNH Patient Travel Fund Map of Specialists Sign-up Articles Newsstand Stories of Hope "I'm Like You" Patient Stories Research Articles Podcast Episodes About Us Our 35th Anniversary AAMDSIF Staff Board of Directors Medical Advisory Board Patient Education Council Leadership Awards Financials Code of Ethics Operating Policies Mission Statement Our Impact Donate PNH Foundation Merges with AAMDSIF Now comes the business of seamlessly incorporating the components of the PNHF so that we create a unified organization that fits the needs of all of our patients. Our number-one priority has always been to effectively and efficiently present our organization as the resource hub for all bone marrow failure disease patients, families and health professionals. To that end, we’ve been talking with branding experts about renaming AAMDSIF to better reflect our diseases, as well as our mission and vision. This is no small thing, but it is a work in progress. It will take several months of research and analysis – including input from all of our stakeholders – before we have a sense of the best direction to take. We expect to have a decision one way or the other by the end of summer. Noted here are direct links to PNH-specific information: See a PNH Specialist PNH Disease Information Online Education Support Walk for PNH information will be posted as soon as it is available - the Walk will be in September 2017. And we are here to answer your questions. Please contact our Patient Educator by phone (800) 747-2820 x140 or by email . Patient Guides Download free patient guides, fact sheets, and research summaries. Download Now We Can Help Sign Up for Email Request an Info Packet Contact the Patient Helpline Talk to a Peer Support Volunteer Attend a Patient & Family Conference Donate. Your help makes it possible to meet patients' needs, hold impactful conferences, develop fresh education programs and fund research for the cures, along with improved treatments until cures are discovered. Amount $50 $100 $500 Other $ Other amount Submit Other ways to give: In Tribute Of Learn more Personal Gifts Learn more Corporate Sponsorship Learn more Invest in Research Learn more help@aamds.org Home | Donate | Diseases | Treatments | Education | Support | Patients | Caregivers | Professionals | Articles | About Us | Privacy Policy | Donor Privacy Policy The Aplastic Anemia and MDS International Foundation (800) 747-2820 | (301) 279-7202 4330 East West Highway, Suite 230 Bethesda, Maryland 20814 U.S.A. A 501(c)(3) organization. Tax ID: 52 1336903 Share. Social media brings us together 24/7. Join our online community where you can report, reflect, reconnect. Twitter Facebook LinkedIn YouTube Instagram Pinterest...